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Pregnancy and infant loss: Grieving well

Pregnancy and infant loss: Grieving well

Picture of Kristina Cowan
pregnant woman looking out of window
All rights reserved © 2010 by Salahuddin Ahmad

Losing a baby is the most tragic of human experiences. Whether we lose a child during pregnancy, or from unexpected complications after the baby is born–the grief and pain need to be addressed. If not, they’ll likely resurface, wreaking havoc on our mental health.

Definitions and statistics vary for pregnancy loss. The  calls miscarriage, which is relatively common, “the spontaneous loss of a pregnancy before the 20th week.” Around 10-20 percent of pregnancies end in miscarriage. The  says when a pregnant woman miscarries a child within the first trimester, before 13 weeks, it’s defined as “early pregnancy loss.”

Stillbirth is generally used to define the loss of a pregnancy past 20 weeks, according to the . Each year in the United States, about 24,000 babies are still-born.

Well after childbirth, there’s something the CDC calls  (SUID). SUID happens when an infant younger than 1 dies suddenly and unexpectedly, and the cause of death isn’t immediately obvious. These tragedies are mostly due to Sudden Infant Death Syndrome (SIDS), when a baby accidentally suffocates in bed, or an unknown cause. There were 3,700 instances of SUIDs in 2015.

Loss Hurts, Body and Soul

Regardless of cause, timing, or statistics, the result is devastating. I lost my . The baby, a girl, had one too many of her 16th chromosome, something called trisomy 16. I was sad, angry, and shocked, in no particular order.

Because I’d already experienced postpartum depression (PPD) after the birth of my first baby, I knew I was at risk for recurrence. I allowed myself to grieve. I talked about the loss with family and friends. I went to a miscarriage support group. When we learned the baby’s gender, we named her. I researched miscarriage, to better understand how and why it happens. The information didn’t drive away the grief. It did help me understand how common miscarriage is, and to feel less alone. I didn’t face PPD again. But there’s part of me that still grieves the loss.

A study published in the  in 2011 shows that the loss of a child to miscarriage or stillbirth is associated with “significant depression and anxiety,” especially in a future pregnancy. Even after she goes on to have another healthy child, the mother’s mental health can remain compromised.

The study authors suggest that while infant loss isn’t typically considered a risk factor for a perinatal mood and anxiety disorder, it should be. They encourage care providers to find out whether a pregnant patient or new mom has lost infants in the past: it’s valuable information that can help gauge her risk of developing a mood disorder.

Toward Healing

I agree with the authors of the BJP study. Infant loss at any stage upends our emotional and mental well being. It should be elevated to the same level of importance and consideration as are other risk factors for mood disorders, such as a personal or family history of depression or anxiety, a lack of social support, or marital stress.

Risk factors can’t predict with ultimate certainty who will or won’t face a mood disorder. They can, however, paint a more accurate picture of a patient’s emotional landscape. This educates everyone involved, and helps care providers offer faster, more specific treatment. This is important, because 12-25 percent of new moms encounter a perinatal mood disorder.

October is designated as the month when we acknowledge the grievous blow of infant loss. I don’t believe we should limit our recognition to just one month, though. Grief is a lifelong process. It doesn’t get easier. Healing takes work. Yet we have an amazing capacity for it–to get stronger, to rebuild, and to help others we meet along the way.

Comments

Picture of Missy Woodruff

it wasn't until we experienced this that so many friends came forward saying that they had also experienced something similar. Not exactly dinner party conversation, but got so much support when we told people

Picture of Kristina Cowan

That was my experience too, Missy. Taking the first step leads to support and healing. Thanks for sharing.

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